DBV member Joseph Heenan visited DBV today to share news about a medical trial that he is involved in. Doctors are testing a new tablet to see if it can help stabilise Retinitis Pigmentosa (RP) for people with Usher Syndrome. In the video, Joseph talks in Auslan about the trial. A transcript is below. Joseph doesn’t know if he is taking the real medicine or a placebo! If you want to join the study, click here for more information.
Transcript: Hello, my name is Joseph Heenan. I have Usher Syndrome. I’m visiting to tell you about a new medial trial for people with Usher Syndrome. Here are the tablets that I will take for 2 years. You can join the trial too – download the flyer and send them an email to make arrangements. You can test the medicine for 2 years to see if it helps keep your RP stable. It won’t improve your condition but it might stop it from getting worse. Good luck!
DBV Connect is supported by the Australian Government Department of Social Services. Go to www.dss.gov.au for more information.